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Glossary
About Alpha-1
Quick Facts
Symptoms
Who Is at Risk?
Treatments
Quick Facts about Alpha-1
Here are some things you may not know about Alpha-1:
Alpha-1 is an
inherited disease
1,2
Up to 100,000 people in the US may have it
2,3
It is about as common as many other better-known diseases, such as sickle cell anemia or cystic fibrosis
4,5
You might be among the
95%
of people with Alpha-1 who have not been diagnosed
3
and Alpha-1 can cause significant problems if left untreated. Any of the following symptoms could be caused by Alpha-1
3
:
Asthma that is not helped by rescue or controller medicines
Chronic obstructive pulmonary disease (or COPD)
Chronic bronchitis
Emphysema
, especially if you do not smoke
Symptoms starting between the ages of 25 and 50
Recurrent colds/pneumonia
Cirrhosis
of the liver
You can have peace of mind
To find out more about Alpha-1,
click here
.
Click
here
to find out more about Alpha-1 treatment and caring for your lungs.
If you want further information after seeing the resources available on this Web site,
click here
.
1.
Alpha-1 Foundation - What is Alpha-1? Alpha-1 Fast Facts. Available at:
Alphaone.org
. Accessed September 16, 2009.
2.
COPD International Network-You Are Not Alone. Available at:
http://www.copdinternational.com/Library/alpha-1.htm
. Accessed on September 16, 2009.
3.
Ranes J, Stoller JK. A review of alpha-1 antitrypsin deficiency. Semin Respir Crit Care Med. 2005;26:154-166.
4.
Cystic Fibrosis Foundation. About cystic fibrosis page. Available at:
http://www.cff.org/AboutCF
. Accessed September 16, 2009.
5.
National Institutes of Health. Genes and disease: sickle cell anemia. Available at:
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd.section.98
. Accessed September 16, 2009.